The dr's most recent orders for Henry were nasal cannula during the day and CPAP at night...do not wake him to switch back and forth..he needs his sleep. Soo last night, not sure what happened or who decided what but someone other than the Dr decided to keep him on the nasal cannula for the night because he was doing so well. That's great that he was doing so well, but he was doing great a couple of weeks ago too when they tried that and he went backwards. Now they are trying to slowly wean him instead of just stopping. The nasal cannula just provides him with a little o2, the CPAP is pressurized oxygen that can actually aid in the repair of his lungs.
So i was pretty pissed when I went in this morning. I asked the dr if he changed the orders, he said no, i told him what happened last night. I said I want my son home, so do whatever he needs to make him better..and make sure the nurses are following your orders.
And then Henry is supposed to have physical therapy every M,W,F...no one could tell me if he was getting it. The nurse called the PT office and no one called her back and no therapist showed up.
I'm at the hospital alot. I guess I need to be there more, because I do want him home and I want to make sure everyone else is on that same page. I'm tired, enough of this.
He had another eye exam tonight and the Retina Specialist is starting to see a possible problem. He has been coming once a week but he said he'd be back before monday to check on it again. It's called Retinopathy of Prematuriy, it's not a huge deal since it is being watch so closely but if it gets worse he will have to have laser surgery. Prematurity and massive amounts of o2 for the last 3 months are the cause of it. Hopefully his eyes will be fine though :)
1 comment:
I'm sorry the doc's orders arent being followed.
Maya had ROP that progressed to Stage 2 Plus's Disease. She had laser surgery and her eyes are fine. They watch it so closely now that they are able to nip problems in the bud.
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